When Kathy left for Paris to meet up with Crissy and fam, I packed a bag and moved in with my dad for six days.
A year ago I probably would have gone into that week bracing for disaster. Instead I got something more complicated than that.
I got time with my dad.
Right before Kathy left, he’d been officially approved for hospice. While she was away we spent a lot of time getting everything set up so things would be ready when she got home. Thankfully it all came together. Hospice has been in place for a few weeks now.
I already knew hospice wasn’t giving up — I learned that years ago with my mom. But this still feels different to say out loud. This isn’t about saying goodbye today. It’s about keeping him comfortable and giving Kathy the support she desperately needs and honestly deserves. They manage his medications now. There is more, and there is morphine. There’s a hospital bed in the house, he is just about no longer mobile. An aide comes twice a week to help bathe him. Michael is there three days a week.
The disease is progressing. There’s no pretending otherwise.
But life keeps happening anyway.
Most evenings that week were filled with confusion — repetitive questions, conversations that started somewhere and ended nowhere, stories that looped back on themselves. I stopped trying to make sense of it. I just went along with wherever he was.
And then every once in a while he’d become completely present. Clear. Sweet. Almost childlike. I’d catch myself thinking he’d become my little boy, which I know is completely backwards. But that’s what it feels like sometimes.
Most of the week was actually good though. We watched TV. Ate meals together. Sat outside. Just existed together. I’ll take every one of those ordinary moments for as long as I can have them.
Then there were the nights.
One night he fell in the bathroom and I couldn’t get him up. He was angry and combative and wanted nothing to do with my help. I eventually called Matt. By the time Matt got there I was basically wrestling my eighty four year old father trying to convince him to go upstairs to bed.
My dad wanted to fight me.
At one point he kept trying to bite me.
And I thought it was hilarious. I could not stop laughing. My tiny dad was absolutely convinced he was going to win this thing.
Matt did not find it funny. For him it brought up painful memories of watching his own father decline and I could see it all over his face. Two completely different experiences happening in the same stairwell at the same time.
Sometimes caregiving is heartbreaking. Sometimes it’s absurd. Sometimes it’s both simultaneously and you just have to pick a lane.
The other memorable night involved what can only be described as a complete and total shit storm. Literally. I’ll spare you the details. Just know there was poop everywhere — and at that exact same moment I was pretty sure I’d caught whatever stomach bug has been going around.
Timing really is everything.
Now that Kathy is home we’ve settled into a routine. I go over Tuesday through Friday evenings to help her get my dad ready for bed.
Last week he hurt his wrist and we were convinced it was broken because he was in so much pain. Seeing him hurt absolutely broke me. He has morphine now so they were able to keep him comfortable and it seems to have improved. But that’s the thing I’ve figured out about myself through all of this — I can handle the exhaustion. I can handle the confusion. I can handle the middle of the night chaos. Apparently I can even handle being bitten.
What I cannot handle is seeing him in pain. That gets me every single time.
In the middle of all of this I got my MRI results.
The MRI itself looked good but the original concern wasn’t actually my breast — it was something in the chest wall. My oncologist took my images to their breast conference so everyone could weigh in together. The consensus was that what they were seeing is most likely a surgical suture.
I don’t entirely know what that means.
I don’t really care.
It’s not cancer. We move on.
My carotid ultrasound also came back completely normal. One more thing off the list.
Matt and I worked through our disagreement. We’re okay.
Frank is doing well and back to being fully and completely Frank, which is all I ever ask of him.
Natalie came to visit and I already miss her. I’d been hoping to fly out to Hermosa Beach to help take care of her after her surgery but her mom is going to be there instead. I’m disappointed — I don’t know when I’ll see her next. Hopefully before February. I cannot wait to get back to Puerto Vallarta and Sayulita together.
Last weekend Matt and I had dinner with his Aunt Jean, Aunt Cory, his mom, and his sister. Good food, easy conversation, people you’ve known long enough that you don’t have to perform anything. Karla and Cory came back to our house after and spent the night. We stayed up talking and laughed a lot and had coffee together in the morning.
I’ve been spending a lot of time talking with Megan lately too. Real conversations. The kind that matter.
And I think about Donna a lot. Because she’s carrying so much and most days it feels like she’s down more than she’s up and I wish I knew how to help her find her way back to herself. How to help her find joy. I just want to see her happy.
At least we have something to look forward to. Donna, Terry, and I are headed to Florida at the end of August — I kind of jumped onto a trip they were already planning and thankfully they didn’t mind. And then February, Puerto Vallarta and Sayulita. I am counting the days.
Matt and I have also been decluttering the house. Mostly the garage. It’s astonishing how much stuff accumulates. It’s equally astonishing how sore you can get just trying to get rid of it.
Life still feels heavy most days. My dad has hospice. My body still hurts. There are always appointments and medications and worries waiting around the next corner.
But I’ve stopped believing joy comes after the hard part is over. I don’t think that’s how it works. Not for me anyway.
Joy shows up beside the hard things now.
It shows up in my dad’s face when I walk through the door. In laughing while he tries to bite me. In long conversations with Megan. In missing Natalie because she matters that much. In an ordinary dinner that turned into a sleepover. In Florida at the end of August. In Mexico in February.
The hard things haven’t gone away. They probably won’t.
But we’re still making plans.
We’re still showing up.
And we’re still laughing.